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The second meeting took place in Iceland from september 26 to 27. The theme was "ALS/MND and Helping aids" Groups will arrive sept. the25th. and driven to conference place. Sightseeing and return to airport sept. the 28th. Here the program: Conference two days kl:09:00 – 16:30. 26.september and 27. september Suggested program. Day 1. 09:00-09:45 Registering and handing out papers. 10:00-10:30 Minister of health 10:30-11:00 Chairman of Nordic ALS/MND Gudjon Sigurdsson. What have we achieved from last years meeting? The work ahead. 11:00-11:45 Peter Andersen, professor at Umeå Universitet in Sweden. Research in the world. 11:45-13:00 Lunch 13:00-14:00 Policy and treatment of respiratory condition in Iceland. Thorarinn Gislason, MD, PhD, Dir. Dept. of Allergy, Respiratory Medicine and Sleep, Landspitali University Hospital (E7) 14:00-14:45 Research in Iceland? Elías Ólafsson, MD, Dir. Dep. of neurology, Landspitali University Hospital. 15:00-15:30 Coffee 15:30-16:00 Helpers in Denmark. Jette Möller 16:00-16:30 Helpers in Iceland. Félagsþjónusta Hafnarfjarðar. 16:30-17-00 Being together 19:00-? Dinner, entertainment
Day 2. 09:00-09:45 What is the procedure in getting helping aids in the Nordic countries?. View of the users. 10:00-10:15 Coffee 10:15-11:45 Workgroup (5 question asked) 11:45-13:00 Lunch 13:00-14:30 Result of groups 14:30-15:00 Gretar Gudmundsson MD (Specialist in ALS) 15:00-15:30 Coffee 15:30-16:00 Ideal procedure in getting helping aids for ALS/MND. Kristín Einarsdóttir 16:00-16:30 Minister of social affairs concludes the meeting 16:30-17-00 Being together 19:00-? Formal dinner, entertainment.
The place it will take place is here: www.hotelselfoss.is
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People or persons diagnosed with ALS/MND will be referred to as "PALS" , with the genetic form as "FALS" Persons who helps or works as carer will be referred to as "CALS". Send e-mail to
webmaster@nordic-als.info with questions or comments to this
Website.
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