NORDIC ALS ALLIANCE

Press on flag for your country- Last updated fredag, 27 marts 2009

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General information

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Profile

We are a group of PALS (persons with Amyotrophic Lateral Sclerosis) who have taken the step to combine the Scandinavian countries in the struggle against this disease in all ways from daily living to research.

The Scandinavian alliance includes Denmark, Finland, Iceland, Norway and Sweden.

This Nordic Alliance was founded 2005-09-21.

In 2008, Poland began to assist us as a working-partner, towards a baltic alliance.

The Nordic ALS Alliance functions primarily as a forum for the exchange of information on all aspects of the disease, research and management of care as well as the provision of support through networking and sharing the development of ideas on good practice. Its developing role is the advancement of the patients' views in discussions affecting the well-being of people with ALS/MND. As part of this activity, Alliance members host the annual Nordic Symposium on ALS/MND, which is the pre-eminent event and invites leading researchers and health care professionals in the Nordic countries to present and debate key innovations in their fields.

by PALS ... with PALS ... for PALS

Objectives

The Nordic ALS/MND Alliance’s objectives are:

to increase awareness of ALS/MND

to exchange and disseminate information

to improve the quality of care and quality of life

to stimulate and support research

to provide an Nordic and international identity